About one in four women will have a migraine attack in their lives, according to the American Migraine Foundation, and in extreme cases, as many as 15 times a month. Having migraines this frequently is classified as chronic migraine, meaning you have a migraine more often than not, according to the AMF.
Survey respondents reported having to miss birthdays, graduations, and work due to the condition–and some felt they were skipped over for promotions.
We spoke to five women with chronic migraine to find out what it really feels like. Here are their stories.
“I’m generally between two and four on a pain scale, but twice a week I go to six to eight.”–Rachel Koh, 47, Southlake, Texas
Koh has three numbers she keeps track of every day. One is her pain. “I’m generally between two and four on a pain scale, but twice a week I go to six to eight,” she says. A two or three feels like a “twinge or pulsing,” while the higher numbers bring a throbbing, stabbing pain that takes over her whole head.
Then there’s the nausea scale and the scale for mental acuity. “I’m best in the morning, but by the end of the day, you can’t count on me for anything,” says Koh, whose migraines forced her to give up her job as a Fortune 100 executive. “I have short-term memory loss, brain fog. I don’t drive. Sometimes I can’t string a sentence together.”
She also lists among her migraine symptoms hypersensitivity to light, sound, and smells, as well as diarrhea, fever-like symptoms, and clumsiness.
“I don’t have a life that anyone would envy,” says Koh, who estimates she has about two pain-free days a year. As for childbirth? “I would sign up for that 10 times a year to get rid of what I have every day,” she says.
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