11 Ways to Cope With a Lack of Fibro Support - Article Health

Dealing with chronic illness
If you’re in chronic pain, it’s challenging for you and your friends and family. This is particularly true if you have an "invisible" condition like fibromyalgia, which is hard for other people to understand.

Share your knowledge
Nothing hurts more than to have someone dismiss your pain or treat you with skepticism and resentment if, for example, you can’t clean the house the way you used to. Unfortunately, it happens.

Expand your support system
Even supportive friends can tune you out if you talk about the same pain every day, says Jacob Teitelbaum, MD, medical director of the Fibromyalgia & Fatigue Centers and author of From Fatigued to Fantastic. "It almost becomes like a weather report."

Be choosy
Support groups, whether online or in real life, tend to fall into two categories, says Dr. Teitelbaum: those where people go to vent, get emotional support, and talk about the difficulties in their lives, or those where people focus on new research and getting well.

Find a new doc, if necessary
It’s bad news if a relative doesn’t have your back, but unacceptable if your doctor doesn’t.

Supporting chronically ill patients is one of the most important functions of a primary care doctor, says Dr. Cutler.

Let people say "no"
If you have a chronic illness, you need to be able to ask for help when you need it, says Dr. Teitelbaum. But you also need to be OK with family and friends saying "no" sometimes, he adds.

Consider therapy
If you have a chronic illness and your relationship is blowing up at the same time—such as a spouse or partner who’s openly hostile or doesn’t believe you are truly sick—seek counseling.


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