Speaking with the New York Times in July, Baker recalled her diagnosis with Crohn’s—a chronic inflammatory bowel disease that can affect everything from digestion to immunity to energy levels—in middle school. She’d begun feeling ill, losing weight, running a fever, and complaining of fatigue. After several tests, including a colonoscopy, a doctor emailed her parents the results.
Baker, already nationally recognized in the pool, researched Crohn’s disease and read about people who needed to have their intestines surgically removed. “It was the worst feeling in the world,” she told the Times. “I love swimming more than anything in the entire world, and I thought my swimming career was over.”
Over the next few years, Baker tried several treatment plans, including daily pills and monthly intravenous injections. She also suffered from several immune-related complications, including whooping cough.
But with the help of her doctors, Baker eventually found a treatment that helps manage her symptoms. She still follows that plan today, giving herself biweekly drug injections in her abdomen—a regimen that requires her to fill out extra medical forms and travel with a kit of syringes and medication when she competes.
She also limits her practices in the pool to just once a day (most Olympians do double that) to maintain her energy and reduce her risk of flare-ups. And when her competitions have gotten especially stressful in recent years, she’s reluctantly sat out certain events.
Health’s medical editor, Roshini Rajapaksa, MD, says that Crohn’s disease can vary from mild to debilitating: “For some people, it can be well controlled with oral medications and careful diet, while others with moderate to severe cases may require IV medicines or injections or sometimes, yes, even surgery."
Regardless of its severity, she adds, Crohn’s disease is more than just a stomach problem. “It does include typical GI symptoms like diarrhea, bloating, and abdominal pain, but it really can affect quality of life beyond just that,” she says. “It’s considered an autoimmune condition that can affect the whole body, and it’s something that people need to manage for their whole life.”
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