Living with an inflammatory bowel disease (IBD), such as Crohn's disease or ulcerative colitis, is a challenge.
You don't look sick
"That's one of the hardest things about having colitis—people can look OK on the outside," says Leigh Stein, 35, a fourth-grade teacher in Pittsburgh who was first diagnosed with the condition a
I know what you're going through
When people with IBD tell someone about their condition, they often get an earful about that person's digestive problems.
You've lost weight! You look great!
"My biggest pet peeve is comments about my weight—anything weight-related," says Marge McDonald, 46, who runs a council on aging and senior center in Chelmsford, Mass., and was first diagnosed with ulcerative colitis 10 years ago. She recalls that when her mother, who also has UC, lost about 50 pounds, people kept saying how great she looked.
You're so lucky; you can eat anything and stay skinny
Well, not really. Weight loss is often due to flare-ups that cause severe abdominal pain and bloody diarrhea that can mean spending most of the time in the bathroom.
You've really put on weight!
Prednisone, one of the most effective short-term medicines for quickly quelling a severe flare-up, has several side effects, including weight gain. Another side effect is "moon face," in which the cheeks get rounded, making for a chipmunk-like look that can give the impression that a person is heavy even when his or her body is rail-thin.
Is it OK for you to eat that?
There's no one-size-fits-all diet for people with an inflammatory bowel disease. Fruits and vegetables may be no-nos, but some people do just fine with spicy foods.
Come on, try a bite!
By the same token, many people with ulcerative colitis and Crohn's disease are by necessity very familiar with what foods they should avoid. John G. says he gets annoyed when people ask him why he eats the same thing every time they go out.
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